A bittersweet day

A great day in some ways. Little Ctel walked for nearly a mile today in his unsteady gait (the tumour has affected his balance). So nice to see him splashing in puddles and holding hands whilst walking down the road. And yet knowing that we are going to put him through surgery which will put a stop to that temporarily and possibly permanently is hard to take. We've made the decision to go for surgery but it doesn't make the worry about whether it is the right decision any less. Having a child with this severity of illness is a life full of difficult choices and few "right" answers.