Saturday, December 30, 2006

Bizarre Love Triangle

A day for me and the boy Ctel. Good day but melancholy ending. Can never completely dispell fear of the future.

Thwe wife went to see her parents. Was a last minute thing the previous day. Auntie m had been visiting and since she was going back that way I said why didn't the wife go with her. So she did. Putting the boy to bed solo is always tricky. Such a rare occurrance.But he was happy enough to splash me from the bath. Primly refused to get out of the bath until I gave him time to clean his teeth. With the nurse's help his trachy tapes were changed and he went to bed ok.

He had a good night - for a change. Not too much calling for Mummy or auntie in the morning. Played fine until Granny came in the afternoon. Nice bit of 'normal' time with him. We all went to doctors to collect a prescription but he was very unwilling to do any walking outdoors but happy to race around in the surgery. Very happy when auntie came round. And happy to the point of being hyper when Mummy came home.

Read my emails last night. Brought me back to earth with a bump. Some froma US epenymoma parents group. One about a girl who had died just after Christmas - "now cancer free" her mother wrote. Made my stomach lurch. Another about a boy who's tumours have grown 30% in three weeks (three weeks!). And finally a dx (shorthand for diagnosis) on another email where a child had their tumour completely resected and chemoed only for it to come back on two occasions. Here we are hoping without saying that the boy's next scan will show he is tumour free. Marvellous though that would be, it won't be the end of our worry or possibly his fight. Makes it hard to look positively into next year.

4 Comments:

Blogger ninest123 said...

nike roshe run, louis vuitton outlet, ralph lauren pas cher, nike free, louis vuitton, chanel handbags, longchamp outlet, longchamp outlet, nike outlet, christian louboutin outlet, ugg boots, uggs on sale, tory burch outlet, prada outlet, oakley sunglasses, jordan shoes, sac longchamp, replica watches, cheap oakley sunglasses, louboutin shoes, tiffany jewelry, louis vuitton outlet, kate spade outlet, louis vuitton, nike free, polo ralph lauren outlet, ray ban sunglasses, louis vuitton, polo ralph lauren outlet, burberry, air max, ugg boots, louboutin pas cher, oakley sunglasses, ray ban sunglasses, louboutin, replica watches, longchamp, ray ban sunglasses, nike air max, prada handbags, nike air max, gucci outlet, air jordan pas cher, oakley sunglasses, michael kors, longchamp pas cher, oakley sunglasses, louboutin outlet, tiffany and co

5:57 PM  
Blogger ninest123 said...

michael kors outlet, ugg boots, north face, coach purses, ray ban uk, hollister, hogan, mulberry, michael kors, sac guess, ugg boots, timberland, true religion jeans, ralph lauren uk, hermes, lacoste pas cher, ray ban pas cher, michael kors, oakley pas cher, michael kors, nike blazer, coach outlet, replica handbags, abercrombie and fitch, tn pas cher, nike air max, michael kors outlet, true religion outlet, north face, true religion jeans, air force, burberry, true religion jeans, nike air max, kate spade handbags, vans pas cher, lululemon, michael kors outlet, nike free run uk, hollister pas cher, michael kors outlet, new balance pas cher, nike roshe, nike air max, burberry outlet online, michael kors outlet, vanessa bruno, coach outlet, michael kors, converse pas cher

6:01 PM  
Blogger ninest123 said...

chi flat iron, longchamp, soccer shoes, bottega veneta, instyler, nike roshe, insanity workout, baseball bats, hollister, celine handbags, north face outlet, iphone cases, ghd, mcm handbags, north face outlet, lancel, abercrombie and fitch, asics running shoes, gucci, ray ban, vans shoes, new balance, reebok shoes, babyliss, nike air max, valentino shoes, birkin bag, timberland boots, herve leger, converse outlet, vans, converse, p90x workout, jimmy choo shoes, nike air max, oakley, soccer jerseys, louboutin, hollister, mont blanc, nike trainers, nike huarache, ralph lauren, ferragamo shoes, hollister, mac cosmetics, lululemon, wedding dresses, beats by dre, nfl jerseys

6:20 PM  
Blogger ninest123 said...

supra shoes, pandora charms, canada goose, canada goose, louis vuitton, pandora jewelry, canada goose, wedding dresses, sac louis vuitton pas cher, ugg boots uk, moncler, swarovski crystal, juicy couture outlet, pandora jewelry, swarovski, louis vuitton, moncler, moncler outlet, coach outlet, links of london, juicy couture outlet, canada goose uk, louis vuitton, ugg,ugg australia,ugg italia, karen millen, moncler, doudoune canada goose, marc jacobs, ugg,uggs,uggs canada, hollister, canada goose outlet, pandora charms, montre pas cher, canada goose outlet, moncler, louis vuitton, moncler, ugg pas cher, bottes ugg, moncler, toms shoes, moncler, canada goose, replica watches, thomas sabo

6:35 PM  

Post a Comment

<< Home