Tuesday, November 21, 2006

Unbelievable

Shocking night last night. Shocking day today.

The boy had hardly slept yesterday, notwithstanding the general anaesthetic. So when he fell asleep at 7.30pm hopes were high that he have a good sleep. Oh no. Awake at 9.00pm. Asleep at 9.45pm. Awake at 11.45pm. Asleep at 12.30am. Awake at 2.00am. It all becomes a bit of a blur after that. Nebuliser after nebuliser. And demanding that I gave them all. Feeling pretty punch drunk today and dreading a repeat performance tonight.

Today we were surprised to receive a joint visit from his neurosurgeon and oncologist. Never a good thing. They have decided that they do not want to wait for January for the next operation because of the risk that the tumour will take off before then. The tumour removed last week shows active cells. They therefore want to bring the operation forward to two weeks time. This is, in part, because the boy has recovered so quickly from the last one. He took his first few wobbly steps today. We are rather stunned by this unexpected turn of events. This probably means both his birthday and Christmas in hospital. We haven't had time to digest what this means for us, him or work.

4 Comments:

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There are no good words to give, but I do send prayers for clarity at work and some decent sleep at the hospital.

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