Plateau (of normality)

Despite getting to bed very late, the boy didn't sleep much last night. But having risen from his bed yesterday evening, is continuing to make progress. His best day yet. Our stay in hospital is still uncertain as negotiations continue between the Big National Hospital and our local hospital.

The boy didn't go to sleep until late because of last night's pantomime. But was up fairly early. Having found he is able to get out of bed without too much pain, he has spent most the day in the play room. He has been playing with plasticine and water. He has tried more assisted walking which is great. He is back to getting very upset at any suggestion that he should go back to bed to rest.

Saliva from his stoma is still an issue and he has been reviewed by speech and language. We hope he will see an opthalmologist tomorrow (but they said that yesterday) to assess the sight in his right eye.

We are squatting on the other ward for tonight. They are being very understanding - for the time being. But the Big National Hospital are (understandably) reviewing this on a daily basis and remain locked in negotiations with our local hospital about a transfer. This means we have to do all his care during the day. Thw wife and I are pretty exhausted following yesterday's messing about. The local hospital are sending a representative over for a meeting with us and the ward tomorrow morning. Should be interesting.