A day in the life

Less than a week to go until the next op. Tension starting to mount.

The boy had a first trip to the park since the earlier op. He felt well enough to go on the slides and swings. He excitedly told me about the trip and going to the cafe to get tea for Mummy.

Granny came to visit. But this was a mixed blessing as she is very anxious about the op. This is understandable but does tend to disturb our carefully crafted equanimity. Not sleeping very well at the moment. Hard to put fears out of the forefront of my mind at night. There seems to be a constant theme in the posts about this but it's a constant in our lives since the boy was diagnosed.